SAIDA - The South African Inherited Disorders Association

Noonan syndrome is a condition that can affect the heart, growth, and mental and physical development. It is generally recognized by a heart valve defect present at birth, short stature, droopy and wide set eyes, and low set ears. Features that are often present include low hairline in the neck region, striking blue or grey eyes, curly hair, and chest deformities. Affected children may have behavioral and learning problems. The incidence is between 1 in 1000 to 2500 children.

The Noonan Syndrome Support Group (NSSG) was founded in 1996 by Wanda Robinson in the USA. To visit their site click on http://www.noonansyndrome.org . The South African representative of NSSG, Lucy Cinnamond, can be contacted at cinn@global.co.za . NSSG operates a list forum (discussion forum). If you would like to subscribe, and be a part of their family, send an e-mail to listserv@home.ease.lsoft.com with only the following command in the message body: subscribe noonan-syndrome (AOL subscribers also need to type a period "." in the subject line).

Noonan's Syndrome Support Group

Mrs L Cinnamond
P.O Box 64216
Highlands North
2037
Tel/Fax: (011) 609-1742
Cell: 082 456 0233
Email: CINN@global.co.za
Website: http://www.noonansyndrome.org